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Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis
Background Prenatal genetic testing, in particular non-invasive prenatal testing (NIPT), as well as screening for risks associated with pregnancy, and counseling, play pivotal roles in reproductive healthcare, offering valuable information about the health of the fetus to expectant parents. This study aims to delve into the perspectives and experiences of women considering genetic testing and…
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Patient narratives – a still undervalued resource for healthcare improvement
In recent years, patient narratives have attracted increasing attention as a valuable source of insights into the subjective experience of healthcare. This paper outlines a best-practice approach to the collection, analysis, and use of patient narratives, based on current literature and on the experience of developing the Swiss Database of Individual Patient Experiences (DIPEx). The…
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Addressing Volatile Ethical Issues of Covid-19 with the Core Five Enduring Values List for Health Care Professionals
As we continue to adjust and assess our efforts to address changing pandemic challenges, we need to consider not just clinical metrics, but also key moral and societal core values: autonomy, privacy, equity, proportionality, and trust. From an ethical perspective, the Covid-19 pandemic is like a prism: It helps us see the spectrum of issues…
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Privacy, Data Sharing, and Data Security Policies of Women’s mHealth Apps: Scoping Review and Content Analysis
Here the mastermind is my friend Najd, not me. Kudos to Najd! Everyone’s using these mHealth apps, right? To check your sleep, to do your exercises, to track your menstrual cycle, and what not. It’s a wealth of personal sensitive data – they’ll manage them good, right? Wrong. Oh, so, so wrong. Long story short:…
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Concerns Around Opposition to the Green Pass in Italy: Social Listening Analysis by Using a Mixed Methods Approach
What’s the opposite of active social listening? Well, you write it ‘passive social listening’, but you read it ‘spying on people’. Is it doable? Yes. Is it ethical? Meh. This little friday project explores the possibilities, the impact, and the ethical implications of mixed-methods passive social listening of no-green-pass groups. The methods are cool, but…
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A Novel Risk and Crisis Communication Platform to Bridge the Gap Between Policy Makers and the Public in the Context of the COVID-19 Crisis (PubliCo): Protocol for a Mixed Methods Study
Here we invented something new, useful, and cool. Nice combination, I like it. Let’s say there’s a public health emergency of some sort. Let’s say you are a policy maker, a ministry man, or some other cool person wearing cool suits or tailleurs and having to make choices, sometimes hard choices. How useful would it…
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COVID-19 and the ethics of quarantine: a lesson from the Eyam plague
The Eyam Plague has been a dreadfully fascinating epidemic. The first response to plague epidemics in the seventeenth century was often quarantine, a measure detested by those who were subjected to it, and often violently opposed. In Eyam, however, things took a different turn: the parish priest William Mompesson persuaded the local population about the need…
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Making sense in the flood. How to cope with the massive flow of digital information in medical ethics
This little paper discusses the (over)proliferation of academic publications and the impossibility of keeping pace with new literature. I define the issue and present a set of easily usable methodological strategies to cope with the flood. PS: maybe a bit less easy to use, but much more fun&powerful: The Mighty TopicTracker AbstractScientific publications have become the…