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Cross country analysis of qualitative interviews: Developing a method, a community and an understanding of how Covid has been experienced around the globe
Since early 2020 there have been thousands of papers, reports, analyses, podcasts and media articles documenting each stage of the Covid-19 pandemic, as well as many hundreds of reviews, opinions, discussion pieces and commentaries interpreting the impacts of this genuinely unprecedented (at least in terms of the societal response) global event. It might be reasonable…
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Exploring the role of AI in classifying, analyzing, and generating case reports on assisted suicide cases: feasibility and ethical implications
This paper presents a study on the use of AI models for the classification of case reports on assisted suicide procedures. The database of the five Dutch regional bioethics committees was scraped to collect the 72 case reports available in English. We trained several AI models for classification according to the categories defined by the…
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Women’s experiences with non-invasive prenatal testing in Switzerland: a qualitative analysis
Background Prenatal genetic testing, in particular non-invasive prenatal testing (NIPT), as well as screening for risks associated with pregnancy, and counseling, play pivotal roles in reproductive healthcare, offering valuable information about the health of the fetus to expectant parents. This study aims to delve into the perspectives and experiences of women considering genetic testing and…
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AI model GPT-3 (dis)informs us better than humans
Artificial intelligence (AI) is changing the way we create and evaluate information, and this is happening during an infodemic, which has been having marked effects on global health. Here, we evaluate whether recruited individuals can distinguish disinformation from accurate information, structured in the form of tweets, and determine whether a tweet is organic or synthetic,…
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The PHERCC Matrix. An Ethical Framework for Planning, Governing, and Evaluating Risk and Crisis Communication in the Context of Public Health Emergencies
Risk and crisis communication (RCC) is a current ethical issue subject to controversy, mainly due to the tension between individual liberty (a core component of fairness) and effectiveness. In this paper we propose a consistent definition of the RCC process in public health emergencies (PHERCC), which comprises six key elements: evidence, initiator, channel, publics, message,…
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Patient narratives – a still undervalued resource for healthcare improvement
In recent years, patient narratives have attracted increasing attention as a valuable source of insights into the subjective experience of healthcare. This paper outlines a best-practice approach to the collection, analysis, and use of patient narratives, based on current literature and on the experience of developing the Swiss Database of Individual Patient Experiences (DIPEx). The…
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Ethical dilemmas in the time of COVID-19: mapping, understanding, building systemic resilience (PhD dissertation)
This is my PhD dissertation. As it contains quite a lot of NLP, I thought the best way to describe it is via NLP – so the image above is a word cloud with the top 45 most frequent words in the dissertation itself. Abstract The outbreak of COVID-19 has posed unprecedented challenges to public…
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Addressing Volatile Ethical Issues of Covid-19 with the Core Five Enduring Values List for Health Care Professionals
As we continue to adjust and assess our efforts to address changing pandemic challenges, we need to consider not just clinical metrics, but also key moral and societal core values: autonomy, privacy, equity, proportionality, and trust. From an ethical perspective, the Covid-19 pandemic is like a prism: It helps us see the spectrum of issues…
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Privacy, Data Sharing, and Data Security Policies of Women’s mHealth Apps: Scoping Review and Content Analysis
Here the mastermind is my friend Najd, not me. Kudos to Najd! Everyone’s using these mHealth apps, right? To check your sleep, to do your exercises, to track your menstrual cycle, and what not. It’s a wealth of personal sensitive data – they’ll manage them good, right? Wrong. Oh, so, so wrong. Long story short:…
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TopicTracker: a Python pipeline to search, download and explore PubMed entries
This is cool stuff – have you ever lost hours tracking down papers on this or that very specific topic? Ever wanted an easy peasy way to simplify your life? Wander no more, ’cause this is genuine wonder. One ring to rule them all. This sw lets you run queries, get entries, NLP content. It…
Publications
These are my publications, including papers, software and datasets (yup I like to be inclusive). True, there’s my ORCiD and my Google Scholar and even my Zenodo, but hey, this is a curated and commented collection 🙂