ethics
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2026
Why ethics in social listening and infodemic management matters for public health
In a time where mis/disinformation continues to shape public discourse and influence policy decisions, the need for effective and ethical infodemic management has never been more pressing. In this context,…
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2025
Research with Health Data: Ethical Issues, Risk Mitigation, and Data Management Practices
Health data offers immense potential for advancing medical research, but it also raises pressing ethical questions. This lecture and the following workshop explore the complex landscape of working with health-related…
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Source framing triggers systematic bias in large language models
Abstract Large language models (LLMs) are increasingly used to evaluate text, raising urgent questions about whether their judgments are consistent, unbiased, and robust to framing effects. Here, we examine inter-…
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Psychedelics beyond medicine: Treatment, enhancement, hype, consent, and the limits of medicalization
The current revival of interest in classic psychedelics and other psychoactives such as ketamine and MDMA, coupled with changes to their regulatory status in many jurisdictions, necessitates rigorous ethical guidelines…
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Healthcare resource allocation for rare diseases: an exploratory survey of Swiss citizens’ preferences
OBJECTIVE: This study explores how Swiss citizens prioritise healthcare resource allocation for rare diseases, considering variables such as disease rarity, treatment cost, patient age and treatment outcomes. METHODS: We conducted…
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A Mixed-methods Study of Deep Brain Stimulation’s Temporal Impact on Parkinson’s Disease Patients: Insights from Short-, Medium-, and Long-term Experiences
Introduction Deep brain stimulation (DBS) is a well-established neurosurgical treatment and is considered the standard of care for refractory Parkinson’s disease (PD). While the evaluation of DBS outcomes is often…
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S.A.R.A.H. and the decline of trust in health information: a case study
This case study critically examines S.A.R.A.H. (Smart AI Resource Assistant for Health) as an element of the World Health Organization’s (WHO) digital health strategy, focusing on its design and generated…
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Mastering critical thinking skills is strongly associated with the ability to recognize fakeness and misinformation
In today’s world of information overload, people need skills to quickly and critically evaluate online content; they must be able to consider the credibility and quality of information as well…
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Introducing Preference Epidemiology: Improving Patient-Centered Approaches in Health Decision-Making
Preference epidemiology is an emerging field that examines how individual values, preferences, and perceptions influence health-related choices, particularly in contexts involving complex trade-offs between benefits, burdens, risks and harms. This…
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TERA: Translating Ethics into Regulatory Action
In this deck I present my overall work and research interests, and an update on the TERA (Translating Ethics into Regulatory Action) research project, which is the core topic for…